Maintaining Mobility: 4 Effective Strategies for People with Spinal Muscular Atrophy
Discover four practical ways for individuals with spinal muscular atrophy to stay active. From balanced nutrition and ongoing therapy to aquatherapy and respiratory care, these strategies can help improve mobility and quality of life. Technological innovations like exoskeletons and supportive equipment further aid in maintaining independence. Staying active is vital to managing symptoms and preventing secondary complications associated with SMA.
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Managing a long-term health condition can be challenging, especially when it impacts physical movement. Spinal muscular atrophy (SMA) is a genetic disorder that weakens muscles throughout the body, particularly affecting breathing and limb strength. Reduced muscle strength makes staying active difficult, but inactivity can worsen symptoms like joint contractures, poor digestion, and breathing issues. Staying physically active is crucial to prevent these complications and improve quality of life.
For those with SMA, remaining active is essential despite physical limitations. Here are effective ways to stay engaged and maintain mobility:
Adopt a balanced diet: Maintaining a healthy weight plays a vital role in staying active. A diet rich in fruits, vegetables, lean proteins, and whole grains provides essential nutrients to support overall health and energy levels. Monitoring calorie intake helps preserve an optimal body weight.
Continue specialized therapy: Regular occupational and physical therapy remain vital. These therapies involve exercises that enhance flexibility and joint movement, helping prevent contractures — tight muscles that limit mobility and cause discomfort. Consistent therapy supports maintaining muscle function.
Engage in aquatic exercises: Water-based therapy offers a low-impact way to stay active. It reduces joint stress while improving range of motion in limbs. Activities like blowing bubbles can strengthen respiratory muscles, and floatation or resistance exercises enhance muscle strength and endurance.
Protect respiratory health: Preventing respiratory infections is critical for maintaining activity levels. Collaborate with pulmonologists or respiratory therapists to minimize infection risk and support breathing function.
How technology supports activity for SMA patients: Advances such as exoskeletons, specialized wheelchairs, and orthotic devices empower individuals with SMA to perform movements independently. The Muscular Dystrophy Association offers a national equipment program that lends vital mobility aids to those in need, helping them stay active and independent.
